Our Story

Brain Trauma Support & Resources

How it All Started

As they sat together over steaming cups of coffee in their favorite local spot, Peggy gently broached a topic close to her heart with Miriam: the idea of creating a haven for those impacted by acquired brain injuries. Both women, bonded by the shared experience of having children who suffered such injuries, understood the profound need for support. Miriam’s son had endured a severe blow to the head and neck during a downhill skateboard race in 2013, despite wearing what they thought was adequate protective gear. Peggy’s daughter, Ariana, faced a similar ordeal in 2016 when a cheerleading mishap resulted in a blow to her head and neck. While resources for concussions were available, they found these resources often fell short in addressing the complexities of care, treatment, and education, especially for adolescents grappling with post-concussion syndrome.

Their journey was one of relentless searching, countless sleepless nights scouring the internet for answers, days filled with pleading with doctors for guidance, and navigating a maze of treatments and therapies, both conventional and alternative, alongside the heavy burden of out-of-pocket costs. Yet, through it all, they found solace in each other’s understanding, sharing experiences, and facing challenges together.

It was from this place of shared struggle and compassion that Peggy, Ariana, and Miriam envisioned Beyond Concussion. Motivated by a deep desire to ease the path for others facing similar battles, they set out to create a sanctuary of support for patients and families grappling with post-concussion syndrome and acquired brain injuries.

In the words of Linda Poindexter, “One small crack does not mean you’re broken, it means you were put to the test and you didn’t fall apart.” This sentiment resonated deeply with their mission. Beyond Concussion, now a registered 501(c)3 organization, stands as a beacon of hope, connecting individuals impacted by concussions and acquired brain injuries with essential resources across every facet of their healing journey. Through monthly peer support group meetings, they provide a safe space for sharing personal experiences, thoughts, and struggles, fostering a community where individuals can find understanding and solidarity. Their tireless advocacy aims to shed light on the profound effects of post-concussion syndrome, with a vision of becoming the go-to resource hub for all things related to concussion injuries.

Update

As we reflected on Beyond Concussion’s programs and goals for the new year, our focus was on enhancing our services and offerings with the needs of the post-concussion community and its caregivers in mind.

Through our own experiences and conversations with fellow caregivers, we recognized a common thread: the tendency to prioritize our loved ones’ needs above our own well-being. This realization led us to appreciate the importance of supporting each other on this journey. Witnessing the impact of post-concussion syndrome on families, we noticed caregivers often struggle with their own challenges. Thus, from our shared experiences, we’ve developed “Caregiver Connection,” a program aimed at providing support and resources specifically tailored for caregivers.

In addition to this new initiative, we’re committed to continuing our Beyond Concussion Support Group and Workshop, ensuring a comprehensive network of support for individuals affected by concussions and acquired brain injuries.

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2022 Update

Dear Friends,

As the demand for assistance continues to rise, Beyond Concussion remains steadfast in its mission to raise awareness about the profound effects of post-concussion syndrome.

One of the greatest challenges we face is the invisibility of this injury, which often impedes individuals from receiving the support and treatment they desperately need from the medical community. Too frequently, patients find themselves directed towards mental health resources when their symptoms cannot be neatly explained by traditional medical diagnoses.

The all-too-familiar narrative echoes the frustration and despair of countless individuals: “I have post-concussion syndrome. I suffered an accident years ago, diagnosed with a concussion, underwent numerous tests—CAT Scans, MRIs, X-Rays, EEGs. My doctors assured me I was in the clear. But I continued to experience symptoms: chronic headaches, cognitive fatigue, blurred vision, reading difficulties, memory loss, concentration problems, head pressure, light sensitivity… Despite my efforts, I find myself bouncing from one doctor to another, without relief.”

(Source: www.caringmedical.com/prolotherapy-news/post-concussion-syndrome)

 

It’s time to amplify positive narratives!

Beyond Concussion urges the medical community to take persistent concussion symptoms seriously. Let’s collaborate to establish a unified definition of Post-Concussion Syndrome across all medical specialties. Restricting it solely to Sports Medicine confines the scope of care for those who sustain concussions outside of athletic contexts.

Let’s join forces to educate school counselors, teachers, and principals, empowering them to better understand and support students grappling with persistent concussion symptoms and the need for special education services.

Together, let’s make this year one of heightened awareness for persistent concussion symptoms!

Our Team

Peggy Khayamian Co-Founder and Board Member

Peggy Khayamian is co-founder of Beyond Concussion and a mother of two beautiful children who mean everything to her. Passionate about helping and caring for people, she strives to offer information and empowerment, so that everyone can look back on their accomplishments with pride and a deeper sense of their own true power. In the course of her own family dealing with her daughter’s concussion, she found peace and relaxation in helping others in similar situations and raising awareness. Peggy is delighted to have put together this support group for all families touched by the invisible pain.

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Ariana Khayamian Co-Founder and Board Member

Meet Ariana Khayamian, a co-founder of Beyond Concussion, whose life took an unexpected turn when she encountered post-concussion syndrome in 2016. In the face of this challenge, Ariana felt the weight of her brain injury affecting every aspect of her life, convinced that no one truly comprehended the struggles she endured.

However, she refused to be defeated by her circumstances. Recognizing the urgent need for a safe haven where individuals with traumatic brain injuries could freely express their emotions, share their stories, and gain invaluable advice on treatments and therapies, Ariana embarked on a mission.

Thus, the inspiring journey of Beyond Concussion began to provide education and resources for all who seek solace and guidance. Ariana’s unwavering passion for her role enables her to forge profound connections with countless individuals who find support within Beyond Concussion’s community.

Ariana’s dedication goes beyond the digital realm as she actively engages in outreach and public speaking engagements to shed light on her experience with post-concussion syndrome. Through her impactful advocacy, she has become a beacon of hope for those facing similar challenges, proving that life after a brain injury can be filled with resilience and empowerment.

In every way, Ariana Khayamian epitomizes the transformative power of turning adversity into purpose, making a lasting difference in the lives of those touched by traumatic brain injuries through the empowering platform she has helped create in Beyond Concussion.

Nusha Nouhi, PhD Board Member
Miriam Ravesloot Co-Founder and Board Member

Miriam Ravesloot, co-founder of Beyond Concussion, has dedicated herself to serving others. Before establishing the nonprofit with Peggy, Miriam volunteered for the Cystic Fibrosis Foundation and raised funds for the San Diego Brain Injury Foundation. With Beyond Concussion, her focus has shifted to supporting those affected by post-concussion syndrome. Miriam intimately understands the challenges faced by parents of students with this condition, having personally cared for a teenager diagnosed at the age of 15. This firsthand experience fuels her dedication to reducing the impact of concussions through prevention and education. She strives to provide valuable information on treatments and therapies while offering compassionate support and resources to young patients and their families dealing with persistent symptoms. Through Beyond Concussion, Miriam aims to empower individuals and families to navigate the journey of concussion recovery with confidence and resilience.

Peggy Khayamian is co-founder of Beyond Concussion and a mother of two beautiful children who mean everything to her. Passionate about helping and caring for people, she strives to offer information and empowerment, so that everyone can look back on their accomplishments with pride and a deeper sense of their own true power. In the course of her own family dealing with her daughter’s concussion, she found peace and relaxation in helping others in similar situations and raising awareness. Peggy is delighted to have put together this support group for all families touched by the invisible pain.

Meet Ariana Khayamian, a co-founder of Beyond Concussion, whose life took an unexpected turn when she encountered post-concussion syndrome in 2016. In the face of this challenge, Ariana felt the weight of her brain injury affecting every aspect of her life, convinced that no one truly comprehended the struggles she endured.

However, she refused to be defeated by her circumstances. Recognizing the urgent need for a safe haven where individuals with traumatic brain injuries could freely express their emotions, share their stories, and gain invaluable advice on treatments and therapies, Ariana embarked on a mission.

Thus, the inspiring journey of Beyond Concussion began to provide education and resources for all who seek solace and guidance. Ariana’s unwavering passion for her role enables her to forge profound connections with countless individuals who find support within Beyond Concussion’s community.

Ariana’s dedication goes beyond the digital realm as she actively engages in outreach and public speaking engagements to shed light on her experience with post-concussion syndrome. Through her impactful advocacy, she has become a beacon of hope for those facing similar challenges, proving that life after a brain injury can be filled with resilience and empowerment.

In every way, Ariana Khayamian epitomizes the transformative power of turning adversity into purpose, making a lasting difference in the lives of those touched by traumatic brain injuries through the empowering platform she has helped create in Beyond Concussion.

Miriam Ravesloot, co-founder of Beyond Concussion, has dedicated herself to serving others. Before establishing the nonprofit with Peggy, Miriam volunteered for the Cystic Fibrosis Foundation and raised funds for the San Diego Brain Injury Foundation. With Beyond Concussion, her focus has shifted to supporting those affected by post-concussion syndrome. Miriam intimately understands the challenges faced by parents of students with this condition, having personally cared for a teenager diagnosed at the age of 15. This firsthand experience fuels her dedication to reducing the impact of concussions through prevention and education. She strives to provide valuable information on treatments and therapies while offering compassionate support and resources to young patients and their families dealing with persistent symptoms. Through Beyond Concussion, Miriam aims to empower individuals and families to navigate the journey of concussion recovery with confidence and resilience.

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